Raising Money For NBIA Research

Help me raise money for NBIA research by making a donation as I run the Boston 2011 Marathon in April, 2011 in Brittany's honor.


Although I have crossed my marathon finishing line, the race isn't over for NBIA! Please consider making a donation...


We are so close to reaching $5000...only $135 to go!


Checks payable to:


NBIA Disorders Association


And can be sent to:

Boston for Brittany

c/o Sandy and Rich Leap
14852 Ashby Oak Ct. Haymarket, VA 20169 (Brittany's Mother and Father).


Funds will go directly to research in hopes of finding a cure. Also, they are 100% tax deductible.

Racing to Find a Cure

Thursday, February 3, 2011

A Helping Finger

Brittany has had one tough week (so has her mom's fingers, mine for about two hours and Garth's big one as seen pictured).  It was necessary to keep a finger or two in her mouth over the past few days to keep her from clamping down on her tongue and cheek.  I think novices, Garth and myself, did a pretty good job keeping things under control the other day...

Her facial dystonia has been the culprit!  Today Brittany heads to the George Washington Hospital to undergo a procedure to try and find a way to protect her tongue from her unrelenting jaw muscles that send her teeth clamping down on anything in their way (ouch!).

Will you offer your prayers in her behalf as she is put under today?  And keep those prayers coming as the possibility of a trach draws near.

We love the Leap Family...and know you do too.

Remember, the Boston Marathon is drawing near...don't forget to send your donation (and make your guess)!  NBIA needs you.
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