...for Brittany.

"Faith makes things possible but not easy."

I love being with Sandy when she is talking with one of Brittany's many doctors (and there are a lot of them...just add "gists" or "pists" to something like, pulma, neuro or thera and they have been there). She tells them what is what...

...for Brittany.

She is the best mom for Brittany and fighter of NBIA. She keeps lists of medications, lists of surgeries, lists of symptoms, takes pictures, records coughing, breathing, sleeping patterns. She gives oxygen to Brittany when needed, suctions, lifts her to use the bathroom...and if you can believe it...her house is spotless! All this organization...

...for Brittany.

She is a fundraiser for NBIA. She attends meetings, events, seminars. She is on the phone fighting the fight...

...for Brittany.

But what I love best about Sandy is she is Brittany's mom first and foremost. She is with her at night when she cannot sleep. She is at her side 24-7 to give Brittany her many long feedings, to wipe her chin, to keep her from "biting (her dysontia causes her jaw muscles to clamp down on her tongue)", to make her laugh, to keep her happy, and to even tell Brittany to stop being so sassy (and Brittany still has sass)...

...for Brittany.

Both she and Rich continue to give Brittany experiences such as trips to Disneyworld, California, visits to Texas to see her Grandparents, and cruises. They are not sitting idling by waiting...they are living.

...for Brittany.

And with their faith, they know anything is possible. No, not easy. Not one bit. But worth every bit of hard...

...for Brittany